Biotech companies and health insurance providers are motivated not for the greater good, not to serve humanity, but to make a profit. Money is the fuel that drives a capitalist society. If doctors, researchers, and biotech companies reap the benefits of human tissues, certainly donor should, as well. When a person donates bone marrow or an organ, they do it overwhelmingly to serve their fellow man (Matas). Unfortunately, big business in the healthcare industry does not lead by man’s example. The lack of consideration of the Lacks’ family following Henrietta’s death is a true testament to our dysfunctional healthcare system; furthermore the United States carries a heavy history of discriminating against minorities (Richardson). Today, the …show more content…
That same year, congress also amended patent regulations to allow the commercialization of products developed through government-sponsored research (Skloot 210). Patents slow medical advancements because it makes tissue more about ‘ownership’ than progress. ‘Tissue profiteering’ has replaced the greater good. A 2005 study published in Science estimated that some twenty percent of all human genes had already been patented and of those, sixty-three percent were by private firms (Darnovsky, Reynolds). Despite being encouraged by the biotechnology industry, researchers are at risk of violating patent laws because U.S. patent applications remain confidential for the first eighteen months after filing (Darnovsky, Reynolds). One notion is to give property rights to people so they ‘own’ their tissues, and therefore uninvited removal of such tissue by a third party would be considered trespassing or theft (Charo). However, universities claim that property rights in removed tissues would complicate the research process by reducing their ability to use stored tissues effectively (Charo). The African-American community had such little trust for John Hopkins and other hospitals that there was a very good chance Henrietta would have denied the hospital from obtaining her cells for research purposes had they actually asked her (Singer-Vine). When Henrietta arrived at John Hopkins, she was diagnosed with cervical cancer, and she received treatment while in the
The truth is the doctors that took Henrietta’s cells were doing it for a good cause. They didn’t do it to ruin her and her family’s life, they did it to help people and save lives. There were no laws prohibiting the taking of one’s cells, in fact in a later Supreme Court of California ruling, it was actually defended. When tissues are removed from your body, with or without consent, any claim to ownership
It was only a matter of time before a businessman in Virginia saw a way to profit from the success of transplantation. In 1983 H. Barry Jacobs announced the opening of a new exchange through which competent adults could buy and sell organs. His failing was in his decision to use needy immigrants as the source of the organs (Pence 36). As a result Congress, passed the National Organ Transplant Act (Public Law 98-507) in 1984, which prohibited the sale of human organs and violators would be subjected to fines and imprisonment (“Donation Details”).
Clearly, these researchers had their own agenda to acquire a medical breakthrough that would change the history of science and contribute to the greater good of society. However, their authority was used in an unwarranted manner to accomplish their goals, regardless of their respectable intentions in wanting to make medical progress. In reviewing these researchers and medical practitioners’ actions during the 1950’s which entails series of unethical behaviors and violation of human right, it develops an essential need to establish guidelines in the attempt to protect patient’s rights and privacy. Furthermore, due to the alternatives that arise throughout this case, there are many possible outcomes to be considered that could have a significant impact on stakeholders if these courses of action are fallowed. These solutions consequences may involve the tentative research, an advance way of life for the Lack’s family, political turmoil, economic health impact and a society whose cells may have similar experience.
Anything outside of our permission or control is considered an assault. Despite our beliefs and what should be, this was quite contrary with Henrietta Lacks. An article in The Scientist noted “The global rise in biobanks – currently a $1 billion industry that is expected to grow to $2.25 billion by 2015 – also introduces other ethical concerns, including patenting of biological materials, whether donors control what happens to their tissue, whether donors should be compensated, and the privacy issues dramatically highlighted by the online publication of the HeLa genome.” Enhancing public awareness is paramount around this topic along with engaging in the ethical complexities effectively, which in the end could build awareness, boost trust, and improve an understanding around the purpose of biobanks and how they operate. Henrietta Lacks case presented a beneficial context for analyzing the legal and ethical issues that may be raised when human tissues are being used in medical research.
John Moore lost the lawsuit against David Golde, according to the judge he had no right “to ownership interest in the patent - he was not one of the inventors. Nor, it concluded, could a patient exercise property rights over discarded body tissues.” (von der Ropp & Taubman, 2006). The loss of the lawsuit by Moore caused a lot of media attention and again a big ethical discussion in science. As previously said, this story also highlighted the importance of ethical and ownership laws in medical research.
First, the waver that Henrietta signed at John Hopkins gave permission for her doctors to (according to Skloot) (2010) “perform any operative procedures…that they deem necessary in the proper surgical care and treatment of _________________,” (pg. 31). Henrietta’s cells were taken, but not for treating her cancer. Second, because of her race and economic status, Henrietta was an easy target. . In 1951, at John Hopkins, when Henrietta received treatment at a colored operating room. Because of this segregation, The treatment was not as well and the doctors had the ability do take advantage of her but Henrietta did not have much of a choice. In the operating room, Richard TeLinde did not ask her permission to take her tissues, Even if he had, Henrietta would not have been able to say no. Skloot (2010) describes this as a time of “benevolent deception” (pg. 63), where the doctors hid information from the patients at the hospital and patients didn’t question doctors, especially when the doctors were white and the patients were black. This is what made Henrietta such a target at John Hopkins. Additionally, no one thought to tell Henrietta afterwards what George Gey had discovered about her special
The article “Need an Organ? It Helps to be Rich,” by Joy Victory informs readers of how medical systems work for those who are in need of an organ transplant. In the article, Victory talks about a 34-year-old man named Brian Shane Regions - who is in need of a heart transplant, but is not able to secure one because he is not insured. Therefore, not having insurance, Brian is put into an unfortunate situation because he is simply not getting any treatment for his heart failure. This is a great example of how patients without insurance could not be provided with an organ donor. Victory argues a variety of issues concerning how the organ donation system is unfair to certain people. A transplant cost a bundle amount of money, which leads to the rich only able to have the procedure done. While the poor cannot afford the cost of the transplant, creating an unfair situation for the less fortunate. The transplant centers can do anything as they please because they simply care more about the money. However, not all transplant centers treat their patients unfairly, several centers are truly able to support the uninsured patients in need of a transplant. It is simply unfair for the patients, who do not have enough money to pay for transplant and the medical systems are unethical.
The treatment of African Americans in The Immortal Life of Henrietta Lacks demonstrates the lack of ethics in the United States health care system during the 1950s and 1960s. Under the impression that medical doctors at Johns Hopkins Hospital were solely injecting radium treatment for cervical cancer, Henrietta Lacks laid on the surgical bed. During this procedure Dr. Lawrence Wharton Jr. shaved two pieces of tissue from her vagina, one from a healthy cervical tissue and one from the cancerous tumor, without Henrietta’s prior knowledge. After recovering from her surgery Henrietta exited the door marked, “Blacks Only,” the door that signified the separation between White and African-American patients. Had Henrietta been White, would the
Racism wasn’t far from this case the doctor in Henrietta’s case figured that telling her what they were doing would only confuse her and her family even more so they just figure to not tell her or her family at all. This case started in 1951 and the research on the cells still goes on till the present.
Due to severe pains, on January twenty-ninth, nineteen fifty-one, Henrietta went to Johns Hopkins Hospital in Baltimore, Maryland where she was diagnosed with cervical cancer by Dr. Howard Jones. She was a patient in the “colored ward”. During her eight month long radiation treatments, doctors removed two dime-sized samples of her cancer-ridden cervix without ever informing her, asking her permission and letting her family know. Henrietta Lacks died of cancer a few months after her diagnosis on October fourth, nineteen fifty-one, at Johns Hopkins Hospital at the age of thirty-one, leaving behind her husband
As an American, we are asked whether if in a car accident or inevitable death, our organs can be harvested and donated to people in need. This takes away the question of whether someone in your family should be compensated for their donation. The Lacks family, once they discovered the amount of money circulating due to the HeLa drug, believed they had a legal right to it because it was made up of their own DNA. But, if you look at is as if Henrietta had put a donor sticker on her driver’s license, no family member, that I know of, has ever asked for compensation on an organ that was donated after a serious accident. The Lacks family if they had decided to refuse the ability to study and sell the HeLa drugs could have set back scientific discoveries years with many casualties that were saved because of the medicine’s developed. Yes, the family was poor and oppressed but that was not necessarily going to change with the money given to them by the hospital. The money, of course, would have contributed them to providing them a better life, but the system is main offender, not the hospital. Many people of color faced the same challenges the Lacks family did because of the injustices present in our government and
In 1951 there was a young black lady who was named Henrietta Lacks. Henrietta Lacks was a tobacco farmer in Clover, Virginia. Her mother died giving birth and her father moved the family to Clover, where the children were distributed among some of the close relatives. In January of 1951 she went to John Hopkins hospital, which was the only place close to her that treated black patients at the time. Lacks described a “knot” in her stomach that ended up being cervical cancer. During her treatments two samples from her
African-American Henrietta Lacks was a mother of 5 children who was diagnosed with a malignant tumor of rather large size that was located in her cervix. This was said to be cervical cancer. She attended John Hopkins Hospital to be treated. She is famous for her cancer cells, HeLa. Dr. Gey’s took samples of each person’s cells who had cervical cancer who came to this hospital. Henrietta Lacks’ cancer cells were not like anyone else’s cells; they did not die in Dr. Gey’s lab. Her cells actually grew twice in size about every day. I do not think she was treated fairly because her family did not profit from all of the discoveries since it has had such a big impact on the medical field still today.
It clearly obvious that to George Guy- the man who discovered HeLa cells- Henrietta was the same black women she was before she died and after she died. During this period of time, there were no set laws regarding that a patient must give permission or be notified if they cells were extracted from them. Even so, being African American and a woman during this extremely racist time period there was guarantee that she would even be told or lied to, similar to the 600 African Americans who were involved in the Tuskegee syphilis experimentation who were actually lied to.
Innovations and scientific advances in the 20th century brought about further knowledge of genes and genetics, and later of how diseases interact with human cells. This level of scientific progress was unprecedented, and the medical and biological ethics going along with the science needed time to catch up. From the 1950s with the collection of HeLa cells to the early 2000s with Dr. Catalona, there has been debate over who owns tissue samples taken from human beings. This paper presents an argument for a limited ownership of tissue samples.