With all the topics to choose from I chose, “ Should scientist be required to obtain a patient’s consent when they use the patient’s tissue for medical research?”. The reason I chose that topic was because when I was going through the options I kept coming back to this one. I kept coming back because consent is an important part in the field I wish to go into. Just like in the field I am going into this topic also relates to the book “The Immortal Life Of Henrietta Lacks” by Rebecca Skloot. In the book, a woman in her early thirties named Henrietta Lacks did not give her informed consent to have her cells taken from her, but they were and they grew when cultured into what is now known as the HeLa cell line. She did not consent for her
“The Immortal Life of Henrietta Lacks” is the story of Hela cells and the women and family behind them. HeLa cells are the cells that have helped scientists all around the world discover cures and vaccines that have saved thousands of lives. But before they did all those things, they were inside a woman, named Henrietta Lacks, and were taken from her without her knowledge. Her family would not know about her cells until years after her death and millions of dollars in revenue gained from the HeLa cells. At the time doctors did what was considered common practice but did they cross a line? Or were the amazing scientific achievements enough to excuse the violation of personal privacy? Despite good intentions doctors should never have taken Henrietta’s cells without her consent, and furthermore her family deserves compensation for the work those cells have helped accomplish, and the sometimes horrible circumstances they have had to deal with because of the cells.
The main ethical issues in this case is that researches at Johns Hopkins Hospital used Henrietta’s cell in multiple researches and send her cells to other researchers around the world without her family’s consent. Moreover, the Lackes themselves were used in medical research without informed consent, and Henrietta’s medical records were release to journalists without her family knowing.
Topic: Choose an aspect of the law and discuss this in relation to the role of the nurse. (Consent)
In the example with the HeLa cells, a great debate was raised when the book The Immortal Life of Henrietta Lacks was published. The debate centered around the lack of information of where the cells came from, who should have known about the original harvesting, and the lack of compensation for Henrietta’s family once the cells started generating income. Also discussed was the tendency of the medical community to
The social contract of nursing is important because it reflects the nursing's code of ethics, which is to provide care to all who are in need, regardless of their cultural, social, or economic standing. The social contract exists because we rely on a guideline to continue to provide ethical care that is within our scope of practice. Unfortunately, in Rebecca Skloot’s (2010) book, “The Immortal Life of Henrietta Lacks” there were many ethical violations throughout the whole process about the Henrietta Lacks’ cells (HeLa). The author reveals the story about the life of Henrietta Lacks, an African American woman who was diagnosed with a fast-growing cervical cancer at a young age. The cells retrieved from her cervical tumor became the first immortal cell that could survive in the lab and replicate continuously without dying. Without the consent of Henrietta Lacks and her family, these cells later became key components to the development of many groundbreaking inventions such as the polio vaccine and in vitro fertilization. Therefore, the purpose of this paper is to examine the social covenant of nursing in relation to the ethical issues behind the use of the HeLa cells without the patient’s and her family’s consent.
Henrietta Lacks died in 1951 of cervical cancer, leaving behind a husband, five children and some cells taken from her without her permission. These cells continue to revolutionize the scientific field today and have played an integral role in some of the most important advances in medicine: cloning, chemotherapy, gene mapping, the polio vaccine and in vitro fertilization. The Immortal Life of Henrietta Lacks answers a lot of questions regarding the Lacks family, but also poses a number of questions regarding ethics, consent and how far society is willing to go to make medical advances.
With the numerous legal, ethical and moral issues that were highlighted in Henrietta Lacks case, two major ones to note: 1) the Lacks never specifically consented to providing samples of Henrietta’s cervical tissue for research, and 2) Johns Hopkins University releasing Henrietta’s name and medical records to third parties without her or her family’s
In the novel, the immortal life of Henrietta Lacks by Rebecca Skloot. Henrietta was a young black woman of 5 children whose cancerous cells were taken out without her knowledge. Those cells later became one of the most important tools in medicine. The case of John Moore vs. Regents of the University of California has similar ethical issues as present in the novel.
Neither Lacks nor her family gave her physician permission to harvest the cells. At that same time, however, permission was neither required nor usually sought. (Washington, 1994) In the early 1970’s, the family of Henrietta Lacks began getting
In this semester’s book club, I have enjoyed the book called The Immortal Life of Henrietta Lacks. This book describes a true and famous cell line in the medical research field, that is the first immortal cell line in the world, HeLa cells. Not until I finished reading this fantastic book, I know that the HeLa cells were taken from a cervical cancer patient, Henrietta Lacks, without letting her know the truth about using her cells in research, even though she died. What more surprising to me was that her family lived a hard life without health insurance while the researchers make many profits from developing HeLa cells, they were never informed about their family member’s devotion to the scientific research.
In 1951, Henrietta Lacks was diagnosed with cervical cancer at John Hopkins Hospital. Without any consent, Henrietta’s doctors took tissue samples from her cervix and attempted to grow them and keep them alive. These cells, known as HeLa cells, began to grow at an unbelievable rate; The HeLa cell became vital for the development of vaccines and other scientific research. However because of Henrietta’s race and economic standpoint, Henrietta Lacks and the rest of the Lacks family was exploited by doctors. The exploitation of the family allowed the doctors and researchers to benefit scientifically and monetarily.
The thought of being an immortal may be something that mankind can never understand or figure out, after all science can only go so far. No human has ever been an immortal, as for a human’s cells that is a different story.
These cells, later known as HeLa cells would go on to cure diseases like Polio. The cells they had taken were studied by doctors who were trying to find cells that would continue to reproduce, and when hers did they were astonished. The debate about these cells comes from the fact that she didn’t give consent for the withdrawal of her cells and her family wasn’t compensated. So the real question… Was it ethical to take her cells without her knowledge even though they have made hundreds of medical advancements? It was both ethical and not ethical because yes, it went on to cure polio and is in testing for many other uncured diseases today, but her family was not compensated for this traumatic experience and she was not treated like a real human being because of the color of her
The Immortal Life of Henrietta Lacks focuses on many issues that Henrietta and her family have faced over the years resulting from the discovery of HeLa cells. One such issue that was recurrently present was the ethical issue of informed consent, or the lack of it, in the Lacks’ case. In the beginning when Henrietta was first being treated with radium to kill her cancerous tumor, her primary doctor, Dr. TeLinde, took a sample of the tissue and sent it to Dr. Gey, head of tissue
Rebecca talks about whether or not people should have the rights to their own tissues. She points out two issues, consent and money. In the past there was no informed consent, so the doctors and researchers felt free to use tissues in whatever way they wished, with little concern for patients' rights. Nowadays there is a different system, and it's required by the law to ask for a patient's informed consent.mThe money issue is a question of whether doctors should be required to tell patients if their cells or tissues are going to be used for commercial research, and what rights those donors should have. Later on, “scientists sequenced Henrietta Lacks's genome and made it public, without asking the family's permission” which was just another way in which the family was violated and looked over (Silver). Apparently Henrietta didn't get her rights, and neither did her children. Any way we look at it, if the family had received any benefits from the cells, it